Welcome to Wondering Wednesdays, a weekly post to learn more about me and other bloggers 🙂 If you’re a blogger, please join in every week!
Today’s question is – I’m actually skipping the question, and providing a life update 🙂
Hello my friends. It’s me, the absent blogger. Some people say they are glad to be away from 2020. Me? I’ll be glad when 2021 is over. This has been a very difficult year for our family, and while I don’t typically go vocal about these kind of things, I feel like maybe that should change. So here we go…..
Some of you may know or remember that I had a hysterotomy in January. The surgery was textbook. There was no complications, I was able to go home the next day, and I didn’t have a lot of pain. It was at that time, however, that a new medical issue began (they are not related according to docs). I had a hard time getting around. Seemed like every time I would walk, go upstairs, try to do anything that involved physical activity, my heart would start racing I would lost my breath. At first I thought I was just healing from the surgery.
A month later I was still having the same issue. Two months later, still the same issue. Clearly something was wrong, and my surgeon said that it wasn’t from anything surgical so it was time to check in with my regular doc. I’ll spare you the boring details, but I will say that I had test after test after test. Months of testing, and questions and waiting. And still, had breathing issues. Finally, months later (this month to be exact), we got somewhere. Sort of.
I have a few things going on. One of my valves in my heart is thickening, but it’s not at a point that it needs surgery or anything thankfully. But something to be aware of. My heart, for reasons we still do not know yet, beats too fast. I can’t say or spell the scientific term they used for it lol. But essentially my resting heartbeat is faster then it should be, and then as soon as I try to get up and do something physically, it shoots way up high. This makes my blood pressure skyrocket too. Which is why I get so out of breath.
I have had to take it super easy the past couple of months. I’m not supposed to exert myself, or get upset (easier said then done), and essentially avoid anything that would speed up my heart rate. And that will continue for a bit while we try to figure out how to treat this. I have started taking medication to lower my heart rate. Started on one dose, and that didn’t do anything so now I’m trying another. If this doesn’t work, then I’ll have to see a specialist. But the fun doesn’t stop there. I’m not allowed to have caffeine, except for one cup of coffee in the morning that I nicely asked (aka begged) the doc for, and I have a very limited sodium intake daily allowance. 1500 mgs, which is equivalent to less than a teaspoon of table salt.
This diet is a shock to my system to be honest. I’m a salt junkie, which honestly is probably part of the reason I am in this mess to begin with. But there is sodium in EVERYTHING. I mean, things I don’t even think about have sodium. I have a lot more research to do, and I’m only in the beginning. It is hard, I’m not going to lie. I have to keep a journal of what I eat along with the sodium intake. My diet mostly consists of fruits and veggies and bland tasting food, and I am hungry all the time. But until I can find recipes that are low sodium, and figure out how to navigate meals and snacks, I’ll probably be cranky and irritable lol. It’s going to be a long road, but doable with family, friends, and the Lord.
But this isn’t all.
I also have sleep apnea, which contributes to me being tired all the time. I’ll need to get a CPAP once insurance approves it. It was scary to find out how much I stop breathing during the night. SCARY. But there’s an answer. I am slightly fearful of the machine, mostly because I am claustrophobic, and move around a lot in my sleep. So hopefully there’s a machine that will work with this!
But this isn’t all.
My daughter has some of her own health issues. She is tired all the time, and not just like you and me tired. She’s exhausted. They’ve tested her for everything and nothing comes back abnormal. We’re going to continue seeking different doctors until we can get some answers. Please pray for her!
And this still isn’t all.
A couple weeks ago my husband had an issue that landed him in the hospital. He stayed the night, and required further testing. Turns out he has a cancerous tumor in his bladder. He’s getting it removed tomorrow. I’m thankful the surgery was so quick. We have no idea what will happen after that, we’ll have to wait for the pathology report. But it’s scary. The “C” word is always scary. The unknown is scary. And my husband is a transplant patient, so that makes it even scarier since his body doesn’t really have to ability to fight anything.
We’re trying not to worry too much until we have to, but it’s hard not to. And my heart? Well let’s say the keeping my stress levels down have been super difficult. But I know I need to remain calm through it all so I don’t put myself in heart shock.
Needless to say, I’ve been so overwhelmed by all of this that blogging and reading has taken a back seat. Even social media has to a point. I miss it. Please know that I miss it. And hopefully I’ll do more soon. But for now I need to concentrate on research, and figuring out foods to eat, and making sure my husband and daughter are ok. I know the Lord will get us through. But I’m still human. I have concerns and fears just like everyone.
All this to say, thanks for sticking around even though it’s limited at the moment. And our family would really appreciate your prayers. Especially for the surgeon tomorrow! Thanks for being my friends. My family. I love this bookish community more than you’ll ever know.